Saturday, November 15, 2014

1 year 10 months after my POEM surgery

Almost 2 years after my surgery and all is well.  Here is what has happened since I last posted in March 2013.

In June 2013 (6 months after surgery) I went to see Dr. Swanstrom for the scheduled 24 hour ph test, manometry and an endoscopy.  Perhaps a month before I had been having that lump in your throat feeling you get when a little food is stuck in your gullet.  That was the only symptom I had to report.  He said everything looked fine but decided to give my esophagus a little stretch while he was in there.  My swallowing has been pretty much perfect from that day forward :).

The manometry showed much better pressures which was no surprise.

The 24 hour ph test showed some "abnormal" readings when I was asleep so he has me take a 20 mg Pepcid each night before bed.  I guess this means I have some reflux when I lay down.   I have not asked but I assume the reason I was not aware of it is because the reflux is a small amount.   There are no noticeable side effects from the Pepcid.

I went for another check up last week (endoscopy only) and Dr. Swanstrom said everything looked good.  The next scheduled appointment is for the 4 year check up which would be January 2017.

Swallowing is fantastic and normal.  My weight is steady between 155-160 lbs (135 lbs was my lowest before surgery).  I do have the occasional very small burps and  raspy throat in the morning or feel the need to clear my throat after eating but usually this is like the day after I eat a large meal before bedtime or eat a very fatty meal which I suspect would give quite a few people a little reflux as well.   I am careful to chew my food thoroughly especially thick bread type foods.  

I would say I have had "Heartburn" that was noticeable to me 5 times or so since my surgery.  Each time it has been very brief (a couple of minutes) and I have taken care of it with a little water or a couple bites of something bland.  

Please feel free to contact me with any questions you may have about any of this.  The POEM surgery has definitely changed my life for the better and I would do everything exactly the same if I were to do this all over again.

Now for the fun part.

To make a very long story short, we went back to France with our kids this summer for a month and stayed with Joelle and Claude and their friends all over the country.  A week in Normandy, a week in the Alps, a week with Joelle and Claude in Alsace and a week in Paris.  Generous beautiful people and such a formative experience for Phoebe and Ty.  Again I thank Dr. Swanstrom for the opportunity.
Anne Marie took us to a Medieval festival in Normandy near Bayeux.

Hiking in the mountains above Munster in Alsace.  Joelle and Claude are in the back.


Ty and his best French friend Eddie below Mt. Blanc in Chamonix.

Headed back to our friends Lauren and Joceline's house
in Cusy France  after a morning mushroom hunt.

The cheese in France is amazing.

8 comments:

  1. Thank you for posting the update and I can tell you that you are so lucky that your surgery went without problems. I am still recovering mentally and physically from mine and followup and care by Swanstrom I experienced was horrible, almost fatal for me. I am still in pain from thoracotomy I had to clean up infection caused by POEM surgery. You are very lucky. I wish you best of luck and please post again how are you doing.

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  3. Great blog!
    I'm about to get the POEM surgery in a few days.
    How painful was the recovery in the days after the surgery?
    Were you able to eat soft foods the day after surgery?

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  4. Hey Greg,
    I took Tylenol only after leaving the hospital the day after the surgery. I took Tylenol for 4-5 days it seems like, the pain was pretty minor, it felt like I was punched in the chest.
    The day after the surgery I went back to the hotel and ate pretty much yogurt etc. The second day after surgery we had buffet breakfast then crepes for lunch. You will need to chew chew chew chew your food for several weeks so the surgery site does not get irritated.
    Good Luck,
    If you want to email direct feel free I love to chat about the whole thing.
    scottlarsonconstruction@gmail.com

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  5. Greg,
    I had the POEM procedure done 1 week ago today. Still having problems swallowing.At night I almost have to sleep at a 90 degree angle so stuff doesn't back out of mm mouth keeping me up at night. MD say it will just take time but i keep reading people eating fine a few days after surgery. Am I being impatient? I'm starting to get worried that surgery did not work for me.
    santiago.charles@gmail.com please email me with any info you have and thanks!

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  6. Hi! I have achalasia 2. My doctor thinks that Heller Myotomy is the only procedure I can have. However, I'm curious about the POEM alternative. I'm still trying to make my decision . . . I would love to hear from you about how POEM has worked for you now that a few years have passed since your last blog post here. If you could share a bit about your experience, I would much appreciate it! Also, if you know of any good POEM surgeons in Oregon, I would love any leads. Thank you so much!

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  7. I just completed my poem surgery yesterday...I have a lot of pain in my chest area and throat.but I am already seeing progress with my eating.achalasia had the best of me for last two years.please tell me how long I am going to have this discomfort in my throat and chest?

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